One of the most challenging aspects of working on Autisable is how incredibly diverse the Autism Community is…
The diversity ranges from parents and grandparents who have children and grandchildren on the Autism Spectrum, to children and Adults who are diagnosed on the Spectrum.
On top of this, each person diagnosed with Autism has an incredibly unique way of communicating their thoughts and ideas about specific topics.
For many people, sharing an idea is rather easy – you have a discussion… a dialogue. For others, it is an incredible challenge.
Enter, the tough skin….
On a recent chat on an autism community website, I wanted to be sure that Autisable is representing the Autism community well.
The response I received was as diverse as the community itself:
“make sure it’s non profit” – as enough people are profiting off of the Autism community
“generate your own audience! and stop stealing ours” – mind you, this was only the second time I was in the chat room and I made it clear I just had a few questions.
There was everything from LEAVE NOW! to the difference between blogging and having a forum being discussed.
I realized quickly what Autisable needed to do…
1 – it will remain a for profit – but philanthropic in it’s efforts. Donating earnings to non-profits that actually help and benefit the autism community and individuals. Funding research is not it’s goal. It’s goal is to help people as directly as possible, and should help organizaitons fiscally that do the same.
2 – keep an unbiased perspective. This is what I’ve found that Autisable is known for – not taking a stance but to promote discussion.
3 – help educate the media on how to appropriately share the challenges associated with Autism. This is a major hurdle for many journalists/reporters – as far too often the first question I’m ever asked is my opinion regarding vaccines…. which is just a reflection on the lack of understanding as to what families deal with everyday.
There’s many more notes I’ve taken away from that visit to that chat room.
The biggest, however, is making sure that everyone has a fair say – especially those who are diagnosed on the spectrum.
It’s because of those diagnosed on the spectrum that we do…what we do…. so we must listen – and act appropriately.
Sometimes what people may say could be harsh, rough, brash….
But having a tough skin will allow you to see the meat of the issues that are brought to the table….that they need to be heard and understood.